I don't understand

I don't understand how it can take so long to go to a doctors appointment. Christie had a neurologist appointment today at 1:00 P.M. I kept calling the facility to make sure she got back O.K. Christie didn't get back to the facility until 7:40 P.M. I asked the nurse how far away was the doctors she said about 45 minutes. Why does it take that long to go and come back? The nurse couldn't give me any answers.
I sent Christie a notebook I made her with all her letters from home in it so she could reread them as she wished. I mailed it last Monday and I don't even know if she got it. I sent it priority so she should have gotten it Wednesday because the mail didn't run on Tuesday for honor of our veteran's.No one seems to be able to locate it, or to even say that Christie has received it.
I had permission from the court appointed guardian to get the evaluations of Christie when she was admitted to FCC. I didn't get them, so I called to see what was taking so long. It seems Richard has now been put in place as the guardian, and I have to have his permission to get any updates or documentation for Christie.I have tried calling him to see if he will honor his statements that he will continue to let me be apart of Christie's life as her Mama, but he hasn't returned my calls. I know Philip told me to never call any of them again, but I really thought Richard was above that.I hope they don't take this as a hostel blog, but I don't know any other way to communicate with him.
Hopefully he will read this and call, or get the facility to send me any and all information they can on my daughter's progress.
Becky

Still getting into stuff

Christie had a pretty long day. Christie had to go to the urologist for a ultra sound. While she was there she pulled out her feeding tube again. Fourth time in 2 days. They had to take her to the ER at Joe D Maggio hospital in Hollywood Fla to put in a new one. When they feed her Christie tells them no she wants to eat. I think that is why they are going to do a swallow study soon.
I also learned that she can and is playing her Nintendo DS I sent her. While she is out of bed she does activities, but when she is in bed she's not doing anything. Thanks for the ideas I need to think of things she can do in bed. Thanks for the continued prayers and that I will get to see her soon. It has been almost a month and I don't know when I will get to go again.
Becky

Ideas

Hi All,
This is a question for the readers of Christie's page. Christie gets really board when she is not in activities. I want to send her somethings to occupy her time, especially when she's in bed or when she is in her wheelchair. Do any of you have any ideas?
Thanks,
Becky
You can email me directly or post them to the comments.
samuraiet@yahoo.com

At a loss

I'm kinda at a loss as to what to report. Christie is hanging in there and doing O.K. Saturday I was concerned because Christie said " She wanted to Die, and she wanted to come home" She seems to have gotten better through the day and the rest of the weekend. She continues to pull out her feeding tube, and she wants to come home. On a lighter note, Christie has been playing her Nintendo DS I got her for Christmas. She wanted it, so I sent it with her care package and the nurses say they have seen her playing it. Also near as I can tell Christie's suppose to have another swallow test and hearing test at the end of November. Details as I get them. Thanks for the continued prayers, especially with the holiday season approaching.
Becky

Still making progress

Christie is still making progress. Christie has a different brace for her left foot, because the left one kept hurting her.Evidently her foot is moving from the other braces pulling them into position. Christie also is to go for another swallow study at the end of November please pray she will pass this one. I hate for her to have to have the test done but if it will mean she can eat again it is worth it.I don't have the details, but I know speech therapy has been working with her swallowing.
The nurse was in her room feeding her and I was talking to her on the phone. The nurse got on the phone and ask me had I said something to Christie, that Christie was shaking her head NO. I laughed I said "yes" , "I told her to keep her seat belt on I didn't want her to get hurt." The nurse laughed to. Christie did get the lock for the seatbelt, so she can't take it off anymore.
Thanks for your continued prayers,
Becky

That girl just won't do..:D

I called Christie D., the nurse was in there feeding her, so I got to talk to Christie. The nurse got back on the phone and wanted to know what I had said to Christie, that Christie was shaking her head NO. I laughed and told her I had told Christie to leave her seat belt on and she was shaking her head no. That's my girl. I love you sweetie.
Love Mama

Behave yourself

Hey Christie D.
I love you and miss you. I called to check on you today like I do everyday several times in fact. I was told you took your seat belt to your wheel chair off and fell. They are going to do an x-ray to make sure you are O.K. They said you only slid but you slid to the foot rest of the chair. Listen to your Mama, " Don't take off your seat belt it is there to keep you safe. I know you want to get up and move, but you can't yet. With continued therapies and the Lords will, you will walk. When you say your prayers, ask God for what you want. The Bible says you have not because you ask not, so talk to God like you where taught and ask for your blessing. I Love you bunches. " I'll think of you as we watch cold case together just like we use to. I asked them to turn it on for you.
Love,
Mama

Fall Pictures

Hey my baby girl,
If you scroll down to the bottom of the page, you will see pictures of the fall leaves, and river here at home. I remember you love fall and the changing leaves. Enjoy your pictures and the surrounding areas of home.
Love,
Mama

HEY MY BABY GIRL.

HEY BABY GIRL,
I'M WRITING THIS IN ALL CAPS BECAUSE I'M EXCITED BECAUSE YOU GET TO READ YOUR BLOG THAT I HAVE MADE FOR YOU. YOU CAN SEE AND READ FRO YOURSELF ALL THE PEOPLE WHO MISS YOU AND LOVE YOU. THEY LEAVE COMMENTS ON YOUR PAGE, JUST CLICK THE COMMENT BUTTONS TO SEE WHAT THEY WANT YOU TO KNOW.
I LOVE YOU AND MISS YOU. MAW AND PAPA SAID HELLO AND THEY LOVE YOU. TONY AND XANDER SAYS THE SAME. I HAVE BEEN PUTTING DIFFERENT PICTURES OF YOUR RECOVERY ON HERE SO EVERYONE WILL KNOW HOW YOU ARE. PEOPLE HAVE BEEN EMAILING, WRITING AND CALLING TO CHECK ON YOU EVERYDAY.
THE LEAVES HERE ARE TURNING, I CAN'T GO OUTSIDE WITHOUT THINKING OF YOU. I WANTED TO MAKE YOU SCRAP BOOK OF THE CHANGING LEAVES, BUT TODAY I WILL GO ALL AROUND TOWN TAKING PICTURES OF THE TREES AND WILL POST THEM TONIGHT, SO NEXT TIME YOU LOOK AT THE BLOG YOU WILL SEE THEM. I WILL EVEN PUT A PICTURE OF THE DOGWOOD YOU PLANTED. IT WAS PRETTIER THIS SUMMER, BUT IT IS GOING TO SLEEP FOR THE FALL, BUT YOU CAN STILL SEE HOW MUCH IT HAS GROWN. I CAN'T REMEMBER WHAT YOU NAMED IT, SO I CALL IT "CHRISTIE" AFTER YOU. I WILL ALSO ADD A PICTURE OF THE BIG OAK, REMEMBER "WYATT".
THIS IS GETTING LONGER THAN I THOUGHT, BUT IT IS SO NICE FOR YOU TO GET TO SEE WHAT I HAVE WANTED TO SHARE WITH YOU.I WILL UPDATE EVEN MORE, SO YOU CAN SEE IT, MAYBE AS PART OF YOUR ACTIVITIES, THIS CAN BE ONE OF THEM. MAYBE IF YOU WANT TO COMMENT, ONE OF THE NURSES OR CNA'S OR ACTIVITIES PEOPLE WILL POST A COMMENT FROM YOU TO ME, MAYBE THEY WILL LET YOU TYPE IT YOURSELF, I KNOW YOU CAN TYPE.
I LOVE YOU BABY GIRL,
LOVE,
MAMA

HAPPY HALLOWEEN

Hi all,
Sorry I haven't written, I couldn't get on my blog page due to user error, I had blocked something in security and couldn't get on. Anyway I titled this update Halloween because Christie has always loved Halloween. I will add some pictures of Christie's past costumes.
I call everyday several times to check on Christie, nothing much to add. Richard and Angie got to visit Monday, they called and let me talk to Christie. Sharon asked when I was going to get to go see Christie again, the answer is as soon as I can. I am tapped out, due to attorneys fees and all the visits I've made thus far. As soon as I save up enough, I'll be gone again. This time, My Daddy is going to make the trip, We will have to take it slower, due to his medical condition. Daddy hasn't seen Christie since her last trip home in December. For those of you close to the family, you know what I mean when I say Daddy needs to go as soon as he can if he is going to see her. I would love to go now, but I have to be content with sending Christie care packages every week. This week I sent her new clothes for her new school, besides she needed winter clothes anyway, all she had was shorts and Capri's for summer.
Thanks for every ones prayers,
Becky
P.S. Pictures at bottom