Just getting through one day at a time

I talked to Christie she still doesn't sound like she feels good. She has a cold.She asked me where I was which is a daily question for her. I told her I was at home she wants to know why. I say I have to take care of Xander (her little brother) Christie says what about me? I tell her you will be home with me soon.Christie says me and you? I say yes me and you.I can hear her smile. I can't wait for the day when I can bring her home.

Christie not feeling good

I called yesterday afternoon to talk to Christie. She didn't sound like herself. I called back and asked the nurse was Christie sick? She said it was starting and Christie came home early from school. I called today to check on her and she didn't go to school. She is not throwing up so that is good. I think she must just have a cold.It amazes me the bond between a Mama and her children. Richard hasn't contacted me to tell me Christie was sick or that she was out of school neither did FCC but I called earlier yesterday than my usual time.Somehow Mamas just know. I just wish I was there to hold her. Everyone knows Mama hugs and Kisses makes everything better.

Court and Visit with Christie

Hello Everyone,

Monday was Presidents Day and no school so Mama and I spent the whole day with Christie. Time went by to fast but we had a great time. We had lunch and supper with Christie as well as getting to see Christie walk for ourselves. I have a video of it but it is sideways. I have to figure out how to rotate it then I will put it up. I also got a hug from Christie with her standing up, she has grown so much she is about 5'7". Tuesday Christie was in school so we went to visit her school and wait for her to get out so we could go visit with her. We had a nice time but since Richard hasn't added me as a contact person the school was very limited as to what they could share. Court was Wednesday morning the Judge did grant our request for the neurologist to see Christie. Richard and I have mediation March 4TH. I hope something positive will come of it. I had planned to meet Paula at FCC to see Christie when we go back down for mediation but FCC informed me that Richard has filed a letter with them on Feb. 2ND that states " I need it to be a matter of record that Christie is not to have any visitors outside of direct family members or to be taken outside by any family member but me. This is very important as Christie and I approach a civil case date." So with that Paula I am sorry but if you come you will not be allowed in. I can feel your frustration as I can't even take Christie outside in the sun and wind that she loves so much.It is bad when even prisoners are allowed more freedom than ones child. Enjoy the new pictures.

Becky

Missing Christie

I talked to Christie earlier and she again started asking "Can I come home" Last night when I talked to her she said she wanted to come home but didn't know how to find it. She constantly begs to come home. I don't know how much sorrow a Mama's heart can hold before it breaks. I would give anything to have Christie home where she so desperately begs to be. I don't know when that will be.

Christie hasn't had an updated evaluation since she was in a level 3 or 4 coma. I had a "board certified neurologist that is going to evaluate her as things have definitely changed with her. Richard will not agree to the evaluation. I am paying for it and it is in the best interest of Christie but he won't allow it. One would think he would be very happy to see where she has progressed to and to where she will be able to be in her life but like everything else where Christie is concerned I have to fight for that to.

Eating update

Christie is doing very well other than wanting to come home. Every night when I talk to her she ask me where I am and I say home. She then asks Why are you home and why am I not home with you? Her diet was changed Monday. She has been upgraded from pureed food to mechanically softened. Which is basically regular food cut up. She went from honey thickened liquids to nectar thickened liquids which isn't as thick as the honey. They changed her diet because the pureed foods where keeping her from sounding out her words because she wasn't clearing her throat enough and her speech was real gargled. Christie went to a spacity doctor to see about her left arm and lack of movement with it. I will update about that as soon as I hear back from Richard.Please continue to Pray things are moving and I hope Christie will be home soon.

Becky

Not really any news

Not much to tell you about. Christie is OK,. Christie did grab an electric wheelchair of another patient. The child was scared and tried to run. In doing so Christie turned over in her chair.She may have hit her head. They took her for x rays and all seems OK. This happened about the 29TH of December. I found out about it almost 2 full weeks later. I miss her very much and hopes she comes home soon.

A New Year and More Possibilities

2010 is fast approaching. To the side of the page is Christie's progression in pictures. In 2008 and 09 Christie has surpassed every ones expectations. Christie was at near death and couldn't do anything for herself. As of today Christie is speaking, eating, writing and other things she had lost the ability to do. If Christie has progressed this much in almost 2 years, I wonder what she will be able to do in another year? It is my hope and Prayer that in 2010 Christie will walk and be home. Christie has spent 2 Birthdays, 2 Thanksgiving,and 2 Christmases in a nursing home.It is time for her to come home.

Happy New Year

Christie Walking

Happy New Year everyone. Here is a great way to start the new year. Richard sent me a video of Christie walking. I sure hope I can see it for myself the next time I am there.

Merry Christmas from Christie

Hello everyone,
Please know this is going to be a long entry. So much to say about Christmas with Christie. We went to see Christie for Christmas. We got there before she got off the bus from school. We spent our time waiting talking with Chris. He is another resident at FCC. Chris is a young man whom Mama and I have adopted. He calls us Mama and Mam maw like Christie does. We visit with him when we see Christie.
Christie was meet at the bus with her Santa hat in hand. Christie and I have always worn Santa hats at Christmas. We spent a few minutes outside looking at a new born kitten that the mama cat was trying desperately to find a safe spot to put her kitten. They must have been born the night before but it appeared that one had drowned in all the rain that Miami had Thursday night.
We went inside to the " Christmas Party" it was a beautiful but sad event all at the same time. It reminded me of a movie scene set at an orphanage. All of the children were set in a semi circle in front of a table laden with gifts. The gifts where handed out and each child received one gift. They spent a little while looking and playing with there gifts. There was also some finger foods provided for the ones that could eat it. Then the children returned to there rooms or to the hall way and Christmas was over. Christie had a great time. She kept asking " is it Christmas" I would say "yes" and she would say "Is there a present for me?" I said "yes, you have a lot of presents" Christie had a great time opening her gifts.
We where also ecstatic to find out while we where there that Christie is now eating 3 meals a day even at school. They are still pureed but she isn't receiving anything from the feeding tube at this time. If this continues with no problem the feeding tube will be removed at a later time. We where also more happy to learn that all though the surgeons and doctors have said Christie will not walk, CHRISTIE IS WALKING. Christie can walk with assistance half the length of the hall way. Pillar the physical therapist said she was going to surprise us with Christie walking on Christmas day. I know Richard will send us all a video of such a happy and monumental moment as he did when Christie first stood.
After the party we hung out with Christie, had supper with her then tucked her into bed. She was exhausted. She gets up for school about 5 A.M. I think I was told.
Saturday we went back. and spent the day with Christie. We just chilled out. We both drew or colored with her new art set. While she drew I treated her to a day at Mama's Spa. I brushed and braided her hair, shaved her legs and applied a nice smelling lotion that Christie liked the smell of, and I cut her toe nails. It was fun to see her admiring her fresh pampered look. Sometime during that day we watched "second hand lion " on TV. I got up in Christie's bed and she sat beside me in her chair with her feet propped up on the bed next to mine. We also had lunch and supper with Christie.
Sunday we spent most of the day with Christie. We had lunch together. Mrs. Patricia the speech therapist was there. Christie ate very well. After lunch Christie was to have therapy.Mrs. Patricia was going to let Christie chose which kind of chips she wanted. Christie is working on eating crunchy things in therapy. When asked what kind she wanted, Christie raised her hand as in school and said actually I really don't want any I'm full.She made a face like a chipmunk with checks full. It was really funny. Christie is so much like the girl she has always been. There's still pieces missing that will never return but it is awesome to see what is.
The whole weekend was great, It was also great to see Brittany, Christie's roommate before she left. Brittany got to go home Saturday for good. She has progressed enough to where she was able to leave. I look forward to the day when Christie to gets to come home.
I can't wait til the next visit with Christie.

Christmas

Hi Everyone,
I have no new updates at this time. I will be going to see Christie for Christmas and I will update and add new pictures then.