Call before you visit

Katrina a family friend who has been visiting Christie since she was at FINR went to visit today and was asked to leave. Richard has made a list of who could visit and who can't. Katrina asked if she was on the list, they said no that Richard had specifically said Katrina couldn't visit. I wonder why. Katrina is a neuropsychologist as well as a friend who lives in Miami and was visiting weekly. When Katrina was there she would send me pictures and visit with Christie so she wasn't so lonely.Katrina would take her children to interact with Christie they would play ball and talk with Christie with the letter board. It concerns me because Christie has so few visitors and now she is limited more. Katrina and her children were such a positive influence in her recovery.

Results

Got an email from Richard, Christie failed the swallow test, she will take another one in about 3 months. I'm glad he let me know but I wish he would call instead of making me wait all day to get home and check my email.
Becky

Email from Richard

I got a email from Richard letting me know that on Dec. 8, Christie will be fitted for hearing aides so they can be ordered.Christie will have another treatment for her legs on the 11, and new braces will be ordered. I'm still waiting on the swallow test results.
I'll let you know about the swallow test as soon as I know.
Becky

at a stand still

Hi All,
Not much to tell you. I call everyday to see how Christie is, and as you know I get nothing from that. Richard texted me on Nov.28 to say he had seen Christie and there was no change. I texted back and said it would have been nice if he had called so he could interpret for me and Christie. He could write to her what I'm saying. The phone was left in the car to charge. If he had texted me before he left I would have called the phone in Christie's room.
Anyway tomorrow is the swallow test. Please pray Christie passes it. I know from before I was blocked of knowledge that the preliminary results will be in tomorrow. They will have a good idea if she passed. If I hear I will post as soon as I get informed.
Becky

learning to communicate

Richard sent me an email and told me that anything sent to Christie will be received by her he doesn't have to review it. He also told me the results from the hearing test. The loss of hearing in he left ear is sever and the loss in the right moderate, but that they will be fitting her for hearing aids but don't know when that will be. He also sent me the Halloween pictures of Christie but he had them developed for me so I don't have them on a CD to be able to post them. Just the same it was nice for him to do that for me. The healing process has started in more areas than one.
Please continue to pray,
Becky

still sad

I call and check on Christie, but I don't get told much. Yesterday when I called I asked them to tell Christie I loved her, she wrote back and said "Mom come take me to my room" Needless to say it broke my heart. I want to go see her, but don't know when I will be able to.
Richard is going to see her tomorrow. Richard still won't talk to me, because he don't like the comments I post on the blog.He did however send me an email, but has yet to reply to my reply.
Keep praying God is still working.
Becky

Hope Christie has a good day

Thursday the FCC is having a Thanksgiving dinner for the residents and their families. I wish I could be there with Christie but I can't. The good thing is Richard will be there or at least he is supposed to be. I hope so. I want Christie to not be alone.I hope though that they don't eat in front of Christie she can't eat and wants to, Last week she pulled her feeding tube out 4 times in 2 days. Christie says she doesn't need it.Hopefully she will pass her swallow test when ever that is (the first of December I think)and maybe by Christmas she will be able to eat.
Love you sweetie,
Mama

Just gets worse

Just to let you all know, I will update the blog as best I can. Richard has been put into place as the guardian and he has wasted no time in limiting me to Christie. When I call the facility they can tell me if Christie is O.K., but if she isn't they can only tell me she is not, but won't tell me what is wrong with her. There response to me when I call is" You have to refer your questions to the guardian. "The camera I sent to have pictures made of Christie, they will not send back to me. I can't have any pictures of her. Any mail I send to Christie will have to be seen by Richard first, they will forward it to him or wait until he visits to see it.He is however nice enough to allow me to still see her knowing I am 14 hours away. I try calling him and he won't return my calls. I called him at work this morning and he said he wrote me a letter and I should get it in a few days. I wonder why he can't talk on the phone.You would think after being with someone for 23 years they would be able to talk to me on the phone. I called him back at work and ask him what was going on why I couldn't have the pictures, he said there was a miss understanding I could have the pictures. He would have them send them to me. We will see. He told me not to call him again, he as Christie's legal father and guardian wanted to keep me updated voluntary. He said the letter would explain. I said " so you will keep me updated on a daily bases" he said No. He said he couldn't talk at work, I said will you call me when you get home he said no, then hung up on me.I guess that is some more of Philips influence because Philip told me I couldn't call his house, I guess he told Richard he couldn't call me.Funny thing is Philip talks to his ex wife where his son is concerned, but I can't talk to my ex husband about our daughter.Anyway if he stands true to his word, I will update. If not, then please keep us in your prayers.
Becky

I don't understand

I don't understand how it can take so long to go to a doctors appointment. Christie had a neurologist appointment today at 1:00 P.M. I kept calling the facility to make sure she got back O.K. Christie didn't get back to the facility until 7:40 P.M. I asked the nurse how far away was the doctors she said about 45 minutes. Why does it take that long to go and come back? The nurse couldn't give me any answers.
I sent Christie a notebook I made her with all her letters from home in it so she could reread them as she wished. I mailed it last Monday and I don't even know if she got it. I sent it priority so she should have gotten it Wednesday because the mail didn't run on Tuesday for honor of our veteran's.No one seems to be able to locate it, or to even say that Christie has received it.
I had permission from the court appointed guardian to get the evaluations of Christie when she was admitted to FCC. I didn't get them, so I called to see what was taking so long. It seems Richard has now been put in place as the guardian, and I have to have his permission to get any updates or documentation for Christie.I have tried calling him to see if he will honor his statements that he will continue to let me be apart of Christie's life as her Mama, but he hasn't returned my calls. I know Philip told me to never call any of them again, but I really thought Richard was above that.I hope they don't take this as a hostel blog, but I don't know any other way to communicate with him.
Hopefully he will read this and call, or get the facility to send me any and all information they can on my daughter's progress.
Becky

Still getting into stuff

Christie had a pretty long day. Christie had to go to the urologist for a ultra sound. While she was there she pulled out her feeding tube again. Fourth time in 2 days. They had to take her to the ER at Joe D Maggio hospital in Hollywood Fla to put in a new one. When they feed her Christie tells them no she wants to eat. I think that is why they are going to do a swallow study soon.
I also learned that she can and is playing her Nintendo DS I sent her. While she is out of bed she does activities, but when she is in bed she's not doing anything. Thanks for the ideas I need to think of things she can do in bed. Thanks for the continued prayers and that I will get to see her soon. It has been almost a month and I don't know when I will get to go again.
Becky