at a stand still

Hi All,
Not much to tell you. I call everyday to see how Christie is, and as you know I get nothing from that. Richard texted me on Nov.28 to say he had seen Christie and there was no change. I texted back and said it would have been nice if he had called so he could interpret for me and Christie. He could write to her what I'm saying. The phone was left in the car to charge. If he had texted me before he left I would have called the phone in Christie's room.
Anyway tomorrow is the swallow test. Please pray Christie passes it. I know from before I was blocked of knowledge that the preliminary results will be in tomorrow. They will have a good idea if she passed. If I hear I will post as soon as I get informed.
Becky

learning to communicate

Richard sent me an email and told me that anything sent to Christie will be received by her he doesn't have to review it. He also told me the results from the hearing test. The loss of hearing in he left ear is sever and the loss in the right moderate, but that they will be fitting her for hearing aids but don't know when that will be. He also sent me the Halloween pictures of Christie but he had them developed for me so I don't have them on a CD to be able to post them. Just the same it was nice for him to do that for me. The healing process has started in more areas than one.
Please continue to pray,
Becky

still sad

I call and check on Christie, but I don't get told much. Yesterday when I called I asked them to tell Christie I loved her, she wrote back and said "Mom come take me to my room" Needless to say it broke my heart. I want to go see her, but don't know when I will be able to.
Richard is going to see her tomorrow. Richard still won't talk to me, because he don't like the comments I post on the blog.He did however send me an email, but has yet to reply to my reply.
Keep praying God is still working.
Becky

Hope Christie has a good day

Thursday the FCC is having a Thanksgiving dinner for the residents and their families. I wish I could be there with Christie but I can't. The good thing is Richard will be there or at least he is supposed to be. I hope so. I want Christie to not be alone.I hope though that they don't eat in front of Christie she can't eat and wants to, Last week she pulled her feeding tube out 4 times in 2 days. Christie says she doesn't need it.Hopefully she will pass her swallow test when ever that is (the first of December I think)and maybe by Christmas she will be able to eat.
Love you sweetie,
Mama

Just gets worse

Just to let you all know, I will update the blog as best I can. Richard has been put into place as the guardian and he has wasted no time in limiting me to Christie. When I call the facility they can tell me if Christie is O.K., but if she isn't they can only tell me she is not, but won't tell me what is wrong with her. There response to me when I call is" You have to refer your questions to the guardian. "The camera I sent to have pictures made of Christie, they will not send back to me. I can't have any pictures of her. Any mail I send to Christie will have to be seen by Richard first, they will forward it to him or wait until he visits to see it.He is however nice enough to allow me to still see her knowing I am 14 hours away. I try calling him and he won't return my calls. I called him at work this morning and he said he wrote me a letter and I should get it in a few days. I wonder why he can't talk on the phone.You would think after being with someone for 23 years they would be able to talk to me on the phone. I called him back at work and ask him what was going on why I couldn't have the pictures, he said there was a miss understanding I could have the pictures. He would have them send them to me. We will see. He told me not to call him again, he as Christie's legal father and guardian wanted to keep me updated voluntary. He said the letter would explain. I said " so you will keep me updated on a daily bases" he said No. He said he couldn't talk at work, I said will you call me when you get home he said no, then hung up on me.I guess that is some more of Philips influence because Philip told me I couldn't call his house, I guess he told Richard he couldn't call me.Funny thing is Philip talks to his ex wife where his son is concerned, but I can't talk to my ex husband about our daughter.Anyway if he stands true to his word, I will update. If not, then please keep us in your prayers.
Becky

I don't understand

I don't understand how it can take so long to go to a doctors appointment. Christie had a neurologist appointment today at 1:00 P.M. I kept calling the facility to make sure she got back O.K. Christie didn't get back to the facility until 7:40 P.M. I asked the nurse how far away was the doctors she said about 45 minutes. Why does it take that long to go and come back? The nurse couldn't give me any answers.
I sent Christie a notebook I made her with all her letters from home in it so she could reread them as she wished. I mailed it last Monday and I don't even know if she got it. I sent it priority so she should have gotten it Wednesday because the mail didn't run on Tuesday for honor of our veteran's.No one seems to be able to locate it, or to even say that Christie has received it.
I had permission from the court appointed guardian to get the evaluations of Christie when she was admitted to FCC. I didn't get them, so I called to see what was taking so long. It seems Richard has now been put in place as the guardian, and I have to have his permission to get any updates or documentation for Christie.I have tried calling him to see if he will honor his statements that he will continue to let me be apart of Christie's life as her Mama, but he hasn't returned my calls. I know Philip told me to never call any of them again, but I really thought Richard was above that.I hope they don't take this as a hostel blog, but I don't know any other way to communicate with him.
Hopefully he will read this and call, or get the facility to send me any and all information they can on my daughter's progress.
Becky

Still getting into stuff

Christie had a pretty long day. Christie had to go to the urologist for a ultra sound. While she was there she pulled out her feeding tube again. Fourth time in 2 days. They had to take her to the ER at Joe D Maggio hospital in Hollywood Fla to put in a new one. When they feed her Christie tells them no she wants to eat. I think that is why they are going to do a swallow study soon.
I also learned that she can and is playing her Nintendo DS I sent her. While she is out of bed she does activities, but when she is in bed she's not doing anything. Thanks for the ideas I need to think of things she can do in bed. Thanks for the continued prayers and that I will get to see her soon. It has been almost a month and I don't know when I will get to go again.
Becky

Ideas

Hi All,
This is a question for the readers of Christie's page. Christie gets really board when she is not in activities. I want to send her somethings to occupy her time, especially when she's in bed or when she is in her wheelchair. Do any of you have any ideas?
Thanks,
Becky
You can email me directly or post them to the comments.
samuraiet@yahoo.com

At a loss

I'm kinda at a loss as to what to report. Christie is hanging in there and doing O.K. Saturday I was concerned because Christie said " She wanted to Die, and she wanted to come home" She seems to have gotten better through the day and the rest of the weekend. She continues to pull out her feeding tube, and she wants to come home. On a lighter note, Christie has been playing her Nintendo DS I got her for Christmas. She wanted it, so I sent it with her care package and the nurses say they have seen her playing it. Also near as I can tell Christie's suppose to have another swallow test and hearing test at the end of November. Details as I get them. Thanks for the continued prayers, especially with the holiday season approaching.
Becky

Still making progress

Christie is still making progress. Christie has a different brace for her left foot, because the left one kept hurting her.Evidently her foot is moving from the other braces pulling them into position. Christie also is to go for another swallow study at the end of November please pray she will pass this one. I hate for her to have to have the test done but if it will mean she can eat again it is worth it.I don't have the details, but I know speech therapy has been working with her swallowing.
The nurse was in her room feeding her and I was talking to her on the phone. The nurse got on the phone and ask me had I said something to Christie, that Christie was shaking her head NO. I laughed I said "yes" , "I told her to keep her seat belt on I didn't want her to get hurt." The nurse laughed to. Christie did get the lock for the seatbelt, so she can't take it off anymore.
Thanks for your continued prayers,
Becky

That girl just won't do..:D

I called Christie D., the nurse was in there feeding her, so I got to talk to Christie. The nurse got back on the phone and wanted to know what I had said to Christie, that Christie was shaking her head NO. I laughed and told her I had told Christie to leave her seat belt on and she was shaking her head no. That's my girl. I love you sweetie.
Love Mama

Behave yourself

Hey Christie D.
I love you and miss you. I called to check on you today like I do everyday several times in fact. I was told you took your seat belt to your wheel chair off and fell. They are going to do an x-ray to make sure you are O.K. They said you only slid but you slid to the foot rest of the chair. Listen to your Mama, " Don't take off your seat belt it is there to keep you safe. I know you want to get up and move, but you can't yet. With continued therapies and the Lords will, you will walk. When you say your prayers, ask God for what you want. The Bible says you have not because you ask not, so talk to God like you where taught and ask for your blessing. I Love you bunches. " I'll think of you as we watch cold case together just like we use to. I asked them to turn it on for you.
Love,
Mama

Fall Pictures

Hey my baby girl,
If you scroll down to the bottom of the page, you will see pictures of the fall leaves, and river here at home. I remember you love fall and the changing leaves. Enjoy your pictures and the surrounding areas of home.
Love,
Mama

HEY MY BABY GIRL.

HEY BABY GIRL,
I'M WRITING THIS IN ALL CAPS BECAUSE I'M EXCITED BECAUSE YOU GET TO READ YOUR BLOG THAT I HAVE MADE FOR YOU. YOU CAN SEE AND READ FRO YOURSELF ALL THE PEOPLE WHO MISS YOU AND LOVE YOU. THEY LEAVE COMMENTS ON YOUR PAGE, JUST CLICK THE COMMENT BUTTONS TO SEE WHAT THEY WANT YOU TO KNOW.
I LOVE YOU AND MISS YOU. MAW AND PAPA SAID HELLO AND THEY LOVE YOU. TONY AND XANDER SAYS THE SAME. I HAVE BEEN PUTTING DIFFERENT PICTURES OF YOUR RECOVERY ON HERE SO EVERYONE WILL KNOW HOW YOU ARE. PEOPLE HAVE BEEN EMAILING, WRITING AND CALLING TO CHECK ON YOU EVERYDAY.
THE LEAVES HERE ARE TURNING, I CAN'T GO OUTSIDE WITHOUT THINKING OF YOU. I WANTED TO MAKE YOU SCRAP BOOK OF THE CHANGING LEAVES, BUT TODAY I WILL GO ALL AROUND TOWN TAKING PICTURES OF THE TREES AND WILL POST THEM TONIGHT, SO NEXT TIME YOU LOOK AT THE BLOG YOU WILL SEE THEM. I WILL EVEN PUT A PICTURE OF THE DOGWOOD YOU PLANTED. IT WAS PRETTIER THIS SUMMER, BUT IT IS GOING TO SLEEP FOR THE FALL, BUT YOU CAN STILL SEE HOW MUCH IT HAS GROWN. I CAN'T REMEMBER WHAT YOU NAMED IT, SO I CALL IT "CHRISTIE" AFTER YOU. I WILL ALSO ADD A PICTURE OF THE BIG OAK, REMEMBER "WYATT".
THIS IS GETTING LONGER THAN I THOUGHT, BUT IT IS SO NICE FOR YOU TO GET TO SEE WHAT I HAVE WANTED TO SHARE WITH YOU.I WILL UPDATE EVEN MORE, SO YOU CAN SEE IT, MAYBE AS PART OF YOUR ACTIVITIES, THIS CAN BE ONE OF THEM. MAYBE IF YOU WANT TO COMMENT, ONE OF THE NURSES OR CNA'S OR ACTIVITIES PEOPLE WILL POST A COMMENT FROM YOU TO ME, MAYBE THEY WILL LET YOU TYPE IT YOURSELF, I KNOW YOU CAN TYPE.
I LOVE YOU BABY GIRL,
LOVE,
MAMA